Update for April 30 / May 1: Mom, cancer counseling, Twitching!
A month ago my Mom entered a "memory care" facility. It was past time, as she's suffering from dementia [1] and needs way more care than Dad could give her (even with in-home help, which we tried). My sister and my niece managed the move expertly and I am thrilled with the place they chose and the way they furnished it.
Here she is with a poster from a gallery she managed, and one of her own sculptures.
Every resident has a shadowbox so the staff can get to "know" their history. In the lower left of Mom's you can see a photo of Mom and Dad from Glendale High.
I'll write more about Mom soon; I'm working on a collection of YouTube videos of her, and coordinating with her collectors and friends (many of whom are in both groups). But tonight I'm writing about Mom and May Day:
When I was in grade school, for several May Day mornings in a row, Mom led us in a ritual from her own childhood. We cut fresh flowers from our garden [2] and put them in little cups of waxed paper, or the baskets that strawberries came in (which we saved specifically for this), and added "handles" made of bent pipe cleaners. Mom took the lead for this part. Then it was us kids' job to scurry over to our neighbors' front doors, hang a homebrew mini-"basket" of flowers on the knob or knocker, and either knock or ring, and then run and hide. Sometimes they figured out it was us; in other cases I have no idea what they thought!
So yesterday I was remembering this and I decided to take Mom some May Day flowers. I asked a local florist for anything nice she had on hand, and she mis understood and gave me too many. (Possibly grateful that I was paying cash, as she had requested. Also I had asked for something that could stand on a small hospital table and instead I got a wrapped bouquet suitable for an opera singer's curtain call.) But I wrote a note to Mom and signed it from ALL of us, so she could look at the flowers every ten minutes and get excited all over again (this used to happen at home too so I had reasonable expectations), and I also told the staff to give her just a few of them and share the others out with the rest of the residents.
May Day now has many additional meanings for me but this year for the first time in decades I honored the family tradition of, "Flowers appeared and who knows how?"
After delivering the flowers I drove across the river to Compass Oncology to meet with my surgeon and her team. In March 2020 they removed a chunk of endometrial cancer (via a total hysterectomy) and I haven't told most people because there was so much else going on at the time! The operation was almost cancelled due to the local hospitals reorganizing to deal with Covid-19, then the operation was re scheduled but at a different hospital, so Dr. McCluskey had to drive across Portland at the last minute ... anyway, I was extremely fortunate to have health insurance and good medical care together, and now it's time to do all the following-up that I postponed because of the quarantine.
For the next phase of treatment, genetic counselors are going to determine whether the mutations detected in the tumor were local to it or indicative of something more serious, which will determine which other sites on my body I need to watch, and how often. They think I am at higher risk of skin and digestive and reproductive cancers generally; no details or photos here, but I'm being vigilant. Again, gratitude is paramount because everything could have been so much worse.
And then to wrap up the evening I helped launch Val's Twitch channel, Couch Co-Op Couple. She bought the PS5 game "It Takes Two" and we avoided spoilers and dove in. We have found that co-op board gaming has helped our relationship (Spirit Island as a way to practice communicating) and so, if we tried playing co-op console games, what could possibly go wrong?
(I warned her that when my nephew tried to teach me the Wii we both cracked up laughing and abandoned the project. Here's her channel description:
One's a gamer. The other isn't. They're playing together. Will their relationship survive?
But I will say I like the way these newfangled controllers vibrate in the players' hands. Since we can't ride rollercoasters right now this is the next best thing.)
So we'll play this game together, Tuesday and Friday nights, until we finish. There is NO need for friends to watch unless you already like this kind of thing. And if you do watch "It Takes Two - take one" (which will be up for 2 weeks, then be replaced by the newer ones) in the background of your own life, here are the three areas where I'm working to improve.
(A) Most of the games I've tried to play on a PlayStation are the ones where I'm looking over my character's shoulder, like Dragon Age: Inquisition and No Man's Sky [3]. Those move the camera for me when I walk or run, so I just ignored the camera button. (And then there was Katamari Damacy which is a whole 'nother type of interaction, and I didn't master that either.) So our first stream has lots of, "Jules hasn't figured out the camera yet."
(B) I'm also over-pushing the direction buttons. Wall jumping is easy because of Fitts's Law: a wall, like the Windows taskbar, is effectively of infinite size and therefore you can't overshoot it no matter how hard you "run" in its direction. But when I had to jump up on something small I kept over-shooting it.
One of the puzzles was a perfect storm for the camera problem plus the jumping problem, so please skip from 55 to 1:18 unless you want to watch me try to jump past two spinning fans and die over and over again. (Tried being petulant. Tried spinning the camera wildly. Neither of them helped. Here's a picture of the bit immediately after the spinning fans ... Val's character thrilled to be moving forward again!)
(C) Although I've watched many, I've never actually been in a "boss fight." (A bit early in DA:I where the main character closes rifts and reveals themselves as the Herald of Andraste is the closest I've ever come and it took me ages ... dragon ages ... to get through it.) At the end of last night's stream I hit my first real boss fight ever, and it was unpleasantly reminiscent of nightmares where I clock into work and all the tools are new. Val gave me some coaching at the end and here's where we are picking up on Tuesday:
That's all for tonight! (they said, gratefully.)
UPDATE from our second Twitch stream: (1) I couldn't hear Val as well (maybe the game sound was too loud) and I realized how helpful her coaching has been, and (2) she sounds proud / happy when I actually "jump jump dash" correctly the first time over an obstacle, which is not very often, but it's motivating, and (3) we ran into another puzzle (like the giant fan blades) that challenged my coordination so that's where we ended our second session, so (4) we're thinking of stopping a bit earlier so we can start each stream by welcoming people and not immediately fighting flat out. Oh, and we were having fun talking to each other so we probably missed some clues ... but we did beat the vacuum cleaner and solve some of the toolbox puzzles so that's where we'll resume tonight.
One of Val's best pieces of advice is to say "game physics!" when I think it's irrational that pushing the jump button again when I'm already in mid air would actually work ...
+++
[1] My Mom's dear friend Liz died in the first wave of Covid-19, but her friend Darlene is still alive. They don't seem to remember each other now, but Darlene's family and ours are exchanging pictures so they can see each other if they want. Both of them have had full, hard-working lives, and the best way to describe where they are now, is that they have sloughed off the past and are living in the moment, just reacting to whatever beauty is around them.
[2] My parents' house on Santa Barbara in Glendale CA, where I lived when I went to elementary school, was the first home where Mom really "had her own garden," after decades of helping her mom and grandmother with theirs. When Dad started to earn sales bonuses at IBM, Mom put in dozens of rose bushes. When Dad moved us all to San Diego in 1969, Mom had to leave her rose garden. Her story about this made a great impression on my first husband Rob Landry, who referred to it when I got an offer from Borland to relocate us from New England to Northern California, and ultimately we turned that down.
Speaking of which, here's video of my Mom's final garden. And here she's trimming the roses in front of my sister's house. Both of these were taken for 2010's "Life in a Day" project in which they asked everyone to shoot video of what they were doing on July 24th. I was pretty new to video (and was using a borrowed camera) and the only one people actually search for is this view of the vintage comics at Excalibur. But now I'm glad I have that video of Mom.
[3] I loved it - even the first release. Which might be because I'm not actually a gamer. As an electronic art person I was blissed out by the randomly generated planets and their flora and fauna. The NMS problems echoed a game in my long-ago screenplay: setting was beautiful but players abandoned it because they couldn't figure out what they could do. (A common game design problem so I can't class it as a prophecy. This was my only full length screenplay, an R-rated chick flick about software development. HitRecord and my paid work both have me writing scripts again - much shorter pieces though)
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